OCD is Not an Adjective

This past weekend I had the opportunity to attend the 26th Annual OCD Conference in Austin, Texas. If you read my first post about Obsessive Compulsive Disorder, you’ll know that I painfully struggled for over a decade before being correctly diagnosed two years ago with OCD. This disorder is greatly misunderstood and this isn’t helped with media’s portrayal of being “so OCD” about organizing and germs.

Throughout the weekend’s events, I met people from all walks of life and from different parts of the globe that are affected by OCD; sufferers, parents and siblings of sufferers, and the therapists and doctors that serve in that field. I met several doctors and therapists that have been extremely influential in my journey with books they’ve written or podcast/Instagram postings. The sessions covered a variety of topics with panels of both experts and sufferers that shared their experiences. Because OCD can reveal itself through many different themes (contamination, intrusive taboo thoughts, relationship, etc.), there were specific support groups scheduled for the evenings. This quickly became my favorite part because I was sitting amongst men and women of different generations and from all over the country and world that knew exactly what it was like to think with a “sticky” OCD brain. There were laughs and tears and conversations that went late into the night. Without getting too dramatic, it was beautiful.

OCD is not an adjectiveI think I have always known that there is relief and hope found when you know someone else understands a similar struggle, but that became magnified through my experience at the OCD Conference. I’ve made friends and will keep in contact between different time zones so that we will know and be reminded that we are not alone. I plan to attend each year so I can learn about new advances in treatment, ideas and encouragement on learning to live with OCD, join forces to advocate for mental health awareness, but most importantly, to gather with others that understand.

If you or someone you know struggles with intrusive thoughts and/or obsessive thoughts that lead to compulsive behaviors, inward rumination, seeking reassurance or avoidance, look further into OCD as a possibility. The International OCD Foundation’s website can give you more information and help you find the support you need.

Dear Discouraged Brain,

Dear Discouraged Brain,

I know you feel heavy and uneasy. Upon waking up you were probably reminded that you “have this problem” and are apprehensive about the day. The basics feel more like a chore and that scattered feeling in your brain makes it seem like not much is getting accomplished in an organized or timely manner. That irritable button gets pushed a lot at the smallest things. Forcing a smile is almost painful when your sweet children engage in a story or tell you something silly. I know it’s really hard and you hear the thoughts streaming that are saying, “It’s not getting any better”, “I shouldn’t feel like this”, “Why do I have to struggle with this?”

Here’s the honest truth. You do feel the way you do and it is all valid. You are allowed to feel sad and angry that this “thorn” seems to get the better of you some days. BUT, you do not always feel like this! I’m writing this letter from the other side of the hill. It’s not too bad over here. The weather fluctuates with a few rain showers here and there, but overall, life is worth the living! I just did a belly laugh not too long ago and giggled at a meme on social media. I woke up this morning and started thinking right away about something I wanted to accomplish with work and around the house. I feel tired right now and do wish my brain acted a bit more like my neighbor, but all in all, I am doing ok.

Each “setback” on this ebb and flow style of mental illness is an opportunity. That isn’t just a line (even though it sounds like one). When you get practice time, it’s a good thing. Because it’s so easy to forget when it feels heavy, here are a few reminders: When the flood of yuck comes, slow that breath and make room for the discomfort. Practice the “radical acceptance” of every previous step and where you are right now. It is important to make a to-do list to help you feel productive, but leave some room in there for rest and self-care (even if you don’t feel like it). This will pass through and the light will peek in, but only in its own timing. Every circumstance is allowed and purposeful. I am really proud of you and I love you.

Love, On the Brighter Side Brain